[danp]

Abbas

Are you from Chennai?

Unani–is it external application or internal medicine?

Dan

[danp]

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[danp]

Thanks to all….

Here is what one doctor said…..when I sent him my Saliva Test for adrenals

“the vitiligo is associated with adrenal problems and you have them”

Here is what another doctor is saying

“
You have obesiously adrenal issues, and
combined
that with thryuodi issues, and low in b12 receptor sites, is
compounding
your problem. sorry I don’t know anyone in your area. Your situation
is not
difficult, and what you are facing is not unique.”

So it is a combination…usually. I have seen lot of thyroid paties(my wife too…) with no vitiligo. It looks like the adrenals get weaker…and then the thyroid gets weaker…and the treatment is taken only for the thyroid….as in my case. Together, B12 deficiency…..as I have……

Unfortunaltely, the western doctors do not consider all of the symptoms and arrive at a conclusion. They do not have time first of all…as they can see 3 more patients…and earn money. I have been to various doctors….but no has taken more than 15 minutes.

Unfortunately we are living in such a type of world. I think we can learn a lot by reading the internet…thanks to the internet.!!!!

I will keep you posted…about all my approaches to solving this painless but yet emotionally painful, disastrous skin condition.

I am dark skinned…so it looks really awful….I am currently using dermabled…as a cover-up…but no luck.
Can anybody recommend me one…which stays on for atleast a day? Even if it is a indian product. Dermablend comes ofl easily and dirties the clothes.

Still for kids…I do not know the answer……..for me since it developed at the age of 40….it could be one of the above reasons. All I can suspect is congenital malabsorption…in this case….eating vitimins would not help…unless you double or triple the dose…which I would not recommend. Testing for B12 Serum, MMA and homocystenie, Pitutary gland malfuntion, tesing for all male/female hormones , small bowel biopsy etc would revel some info about B12 and other absorption problems. Great smokies has a liver detoxifiacation test….which seems to be good. It is how this works….they give you varoius substances to eat….and then you have to collect urine…and send it to them. They would be able to find out how our liver detoxifies the substances……if it is poor then remove all the junk foods with preservatives, chemicals….and artificially flavoured stuff…..they are all over both in US and India.

Ultimately, it looks like I have to retire in a forest with no access to restaurants, video and all materiliastic things/foods…….meaning going back to the olden days how our great grandfathers lived.

Belive it or not….for the last few days….I have stopped rice and curry together. I see a change. IIt is difficult bu possible. It could be the food which we have consumed could have altered the genes in our generation. In this case we can try out different foods(besides chapathi, rice, and curry wit all the spices…preferralble masalas, turmeric onion and garlic). I will start eating only western food for a year and try it out. One doctor has told me to avoid all foods even healthier ones which produces gas…becauses excessive gas leads to more bacteria and malabsorption……so it looks like it can go on an on…..

Exercise together with less stess has helped me to repigment some spots….but I am not able to continue as I am currently addicted to western work style. But I have decided to once for all quit and retire back in India….soon and change the life style and see.

So i have one more research to do….hoepefully you all can help…..thanks Danp

[danp]

Thank you all for your feed back.
I think only Unani(not Hoemeopathy) has better chane of all Herbal/western medicines.
But before trying out Unani….I have to fix the following

I am hypothyroid since 98 and on medicine…and under control….

B12 shots —myself(my B12 was 275….and according to various doctors….it should be above 500). Believe it or not….I had numbness in hands/feets/body for couple of months before taking the shots…now it has all gone. So it looks like B12 def causes some peripheral nerve damage……..BUT a question remains unanswerd…..I do not have Pernicious anemia(as I do not have intrinsic factor) and I am non-veg guy…..nobody know why I cannot absorp much B12……………….so I have decided to take the shots for atleast two years. Maybe this malabsorption problem runs in my family??????
and it could also be liver malfunction as it could not store B12? No doctor was able to answer my questions. Western liver blood tests are useless…they only show up after the damage has occured…not during.

I am stressful person….living in US….of course in Computers……and as I developed Vit spots I developed sleep disorder…waking up night around 2pm daily and falling asleep at 5pm. I found out from the web that adrenal insufficiency could cause this lateley. I did a Saliva Test for Cortisol and DHEAS …….it came out that I have low coritsol. So the stress has exhausted my adrenals…and it cannot produce cortisol……and research shows that 10% of the people with adrenal insufficiency have developed vitiligo….and my family doctor agrees on this. I am planning to do an ACTH test to confirm my low cortisol and then start taking medicines. Vit C….high doses is necessary to build back the adrenals….so I will be adding Vit C too.

I have anitbodies to my Thyroid….and may be I have antibodies to my adrenals and pigment producing cells….I have to test this out.

So from the above—-it could be a combination of liver, thyroid and adrenals—causing the skin pigmentation problems. I have to fix each one…..now.

After fixing all the above……….I will try Unani/homeopathy…….for liver I am planning to take Milk Thistle….that is it ….and avoid too much spicy food and rice for a year and see. No alcohol….I used to drink a lot.

On top of that…..a good multivitamin with Iron, Vit C 2grams a day.

Another thing could be parasites…western blood tests are useless……you have to do a stool test which is offered by some private labs such as Great Smokies……….it could be parasites which are inhibiting the absorption……I have sent in the sample…waiting for the results.

My mouth is ver red including the lips…..does anybody have vit in the mouth…especially if you are a darker person? It looks red…..not white.

I am kind of puzzled how children get vitiligo….I do not think they are prone to nutritional deficiencies….but I think they might has some undiagnosed combined Thyroid/adrenal/liver problems

Definitely a combination of multiple things…..that is why Homeopathy and Unani take long time….as their treatment is to fix the whole body not one particular organ…and during the process….all the damaged organs get fixed.

Additionally……astrologically my Saturn is in the 8th from my Rasi….this could be bad too and Dasa/bhuti also plays an important role…if you believe in it. The reason why I am bringing this up is……I have seen people living in Slums with poor sanitary conditions, less nutrition…etc etc…are still well. So I believe that this is something to do with Karma….which I am paying it off.

Danp

[danp]

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[danp]

Folks

I moved to US 10 yrs ago. from Chennai…..and first developed hypothroidism…..and now Vit which is spreading fast.
Dermablend helps…but fades away after sometime.

No hope….i have contacted drbatras.com —homeopathy? Does it help? just curious

Also one of my friend said that some Siddha/Ayuervedic clinic in Chennai has 90% success rate. He said something like Rupani clinic or similar to that…..Jaya TV advertises the clinic it seems.

Any idea?

I have very dark skin…and am frustrated and hopeless

Dan

[danp]

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