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I will be back there soon… tho of course the differences there at times have been disheartening to some of my friends there !
[/QUOTED]Yes thats true. differance of opinion & feelings are hurt sometimes.
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Nothing came out of Neeta`s herbal ?? Any plans to go for the vitiligo conference ?
[/QUOTED]I checked. but it did not look promising for vitiligo. I am planning to go to conferance though as Dr. montes is visiting. I am also
planning to see him for consultation for my son. Hope everything works out well. He has written another book & he is planning to
publish it by june 2005. If you need a copy let me know. take care.You must log on to your VSI account to access this page.
If you do not have a VSI account, you can quickly create one here!Van:
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I just read on the main msg board that u have started steroids.. oral ??
[/QUOTED]No oral steroids.Not this time. Dr. grimes gives oral steroids but for very short time like a week or two.
As far as UVB she thinks his vit. is very minor for UVB. I hope & pray it remains that way.[QUOTED]
Swinzle is depuiigmenting at a fast rate and her skin is very blotchy now..
[/QUOTED]I am feeling bad to hear that. I hope & pray every thing will work out well for her & you . I know it must be hard
for you to go through this though. But glad to hear that you are not worried about it.[QUOTED]
i would rather post on our Indain board !
[/QUOTED]Did something happen you don’t want to post on main board?
Wish you & your family well too. Take care.
You must log on to your VSI account to access this page.
If you do not have a VSI account, you can quickly create one here!Van …
Wishing swinzle very happy birthday & lots of luv.may all her dreams come true.
how come you don’t post anymore? I don’t see you around much too either here or
main msg board.I hope everything is going well with you. take care .You must log on to your VSI account to access this page.
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If you do not have a VSI account, you can quickly create one here!I can cantact Ms. Muni to see if they have anything for vitiligo. I will let you know. Artesia isn’t far from my place incase i need to see them.
Thanks.Hi! I hope you are feeling better now by reading everybody’s responses. You are not alone in this. There are lot of people with kids in this. My 5-year-old son too has vitiligo. His showed up when he was 3 just like your daughter. Whatever treatment option you choose be consistent with it. It takes time to get the results. According to dr. grimes children show quick response than adults. So be optimistic.
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i find there is no perfect cure for this disease.
[/QUOTED]Even if there is no cure for it now there are definitely various treatments. Something or other will work for your child. Have you tried protopic or elidel? My son is using protopic for past 2 yrs. He got good results from it. My son too is taking multivitamin supplement. Sun exposure is also good for vitiligo.
Don’t loose hope. Whether vitiligo or not your child is always beautiful & you will get over this too. Hope this helps .
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swinzle.. oh well.. her patches are loooming up everywhere.. face, neck, hands,arms trunk. Legs as u know were already depigmented. have just given up…. her patches spread so fast..there is no stopping them.I have stopped treating her…. i will let her depigment and she is happy about it. Thats about it.
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Van:
sometime we all feel like giving up. I can understand how you feel. It might be better if swinzle depigments naturally. Atleast she will be one color. Isn’t that what we are trying to achive? i hope one day we find cure or solid treatment for vitiligo. so no one has to go through this. I know you have raised your daughter to be confident about her image & happiness is more imp in life than skin color. I wish swinzle the best . Take care.Van… I just checked their website. It’s a solon which sells hair care & skin care products . if you give search on yahoo for neeta’s herbal website will pop up. check it out & let me know. The other doc in verginia is spealized in vitiligo? let me know that too. thanks for info.
Van:
I do check web site on & off. Sometimes it takes pressure off by not checking it everyday. Thanks for asking about my son. After summer long of swimming my son started getting patches everywhere. According to Dr. grimes for some people chlorine can aggravate vit. if it not washed immediately after swimming. He lost pigment on his lips. Lips are very hard to repigment. I am doing protopic on it. Any ideas about repigmenting lips? Rest is fine with me. How’s swinzel doing? Hope everything is fine with her too.
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am still looking around for any sort of treatment.
[/QUOTED]Have you already tried protopic? It works very well with sunlight.
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