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[mistik]

PROTOPIC:
I am trying so hard NOT to wash my hands after application of Protopic. The spots are between my thumb and forefinger. I wait about 10 mins before I put on my clothes, as I still worry my clothes will rub off the Protopic.

XTRAC:
Since the derms in your area with XTRAC laser do not use it for vitiligo, I would still make an appointment. Then I would bring printouts of medical articles/literature stating XTRAC has been successfully used for vitiligo. Sometimes we have to educate these derms – they are so behind the times!
At the Vitiligosupport Conference in LA this month, I spoke to the XTRAC rep and he said they are pushing the technology with derms; sometimes the resistance is due to cost, sometimes lack of knowledge.
I REALLY have lost much respect and faith in derms – at times, we have be our own doctors.

NEW SPOTS:
I keep finding new spots too. They say vitamins keep vitiligo stable, but frankly, I keep getting new white spots.
Several days ago, I found 2 tiny spots under my chin (hard to see unless I point it out). Under black light, the spots do not glow or are that visible. But, I’ve read that these may be potential vitiligo spots and should be monitored.
I started putting Protopic on it and zapping my handheld NB-UVB on the spots!
Do you do the same thing with your new spots? Treat them ASAP.

GREEN TEA:
I use green tea bags as they are more convenient. Drink with food if you get queasy.
Brands I use: Stash, Celestial Seasonings, Alvita, etc. available at health food stores, groceries, etc. Buy the “organic green tea”; a bit more expensive but probably purer.
I am sure Walmart sells organic green tea.

You know, there are days I get so depressed thinking why ME? It’s really hard to stay upbeat, but we have to because a positive attitude is the first line of defense.
So hang in there dileep.

[mistik]

Hi dilieep:
Yes, India is on my list to vist. You know, my husband visited Mumbai on business. I could not go with him at the time, so I was very miffed

Thanks about the Protopic application on the hands. I washed my hands shortly after applying on my hands, so I guess this was not a good thing…

I drink green tea all day long. Just plain, no sugar/no milk.
Since I’m part Chinese, I’ve always drank tea with meals (such as jasmine or oolong). Now I drink green tea instead.

Happy repigmenting!

[mistik]

Hi dileep:
Good news about the shingles!! Keep it up.

Yes, I am bit hesitant about going on a long trip because of a break from XTRAC. I will at least have the handheld unit.

But this is a really good trip (wine regions in France, sherry region in Spain, port region in Portugal) which my husband planned as he’s a wine guy. So far, past trip choices were MINE, to which he reluctantly tagged along (Egypt, Turkey, Greece, Jordan, Morocco, Peru, Tunisia, Libya… etc). I’m an archeology buff, so wherever there are ancient stones, I’m there )

We live in Ft Lauderdale about 9 months of the year and in Silicon Valley area/California about 3 months.

Question re: Protopic
1) After rubbing in a bit of cream on the white spots, do you wait a while before putting on your clothes?
I worry that my clothes will remove the cream before my skin absorbs it.

2) I do have 2 spots on my right hand. Do you reapply Protopic after you wash your hands?

re: Vitamins
I am taking a multi-vitamin in addition to the separate B12 and Folic Acid capsules.
Brand of multi-vitamin is Dr Weill, from a health food store.

re: Green Tea
Maybe it helps if you drink it after eating, or when eating, to settle your stomach. Oh wait, you are taking green tea tablets only? You are not drinking it?

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