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  • in reply to: Marriage and Vitiligo. #149551

    Cheer up!!! It’s not so bad, especially for a guy. I am a very happily married woman of Bengali origin. My husband loves me dearly and never batted an eye over my skin when my vit was very noticeable. If anything, vit will only ensure that the person you marry will truly love YOU instead of money or status or other.

    I am totally depigmented now. Well, at the risk of sounding vain, even with noticeable vit, I was rather attractive (hahahahahhahahaha!!!!)……. tooting my own horn, lol.

    Be CONFIDENT!!!!!!!! No matter what, beauty is in the eye of the beholder. If you convey that you lack confidence and that you feel unattractive, then you very much will be in the eyes of others. I can’t tell you enough how important self-confidence goes into making a person very appealing. KNOW that you are beautiful, seductive, and a charismatic charmer, then the girls will flock, my friend.

    Never allow your confidence to become arrogance, however. Arrogance isn’t a delightful trait in a person.

    Anyway, I’m sure you will be fine. Desi boys are usually quite good-looking, even with light spots all-over.

    in reply to: Anyone from Pune/Mumbai? #149514

    It’s wonderful that you can be so resourceful. That is how you will meet your goal. I emailed a little holiday spirit to you.

    good luck!!!

    in reply to: Anyone from Pune/Mumbai? #149488

    I’m so happy for you, Sanjay. You have become so proactive in taking your ultimate decision. I know you will find a good source soon.

    You know, It is so odd that you cannot find the cream in India easily. I have seen a number of depigmented individuals there. I wonder where they got there creams.

    BTW, there are many pharmacies in US that ship the cream abroad. Will Dubai Customs have a problem with it?

    in reply to: DEPIGMENTATION OVERVIEW #149098

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    in reply to: Vitamin D synthesis #149060

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    in reply to: What is green tea #148726

    OK, sipping a delightful beverage filled with antioxidants is quite healthy. It might or might not cure vitiligo, however.

    Please now consider that green tea is quite a common beverage which has been consumed by many Asians, particularly the Chinese, for centuries; and individuals there have still developed vitiligo. I personally know a few Chinese students who have vit, and these students grew up on the tea.:) And did you know that some Chinese doctors recommend that vit patients avoid drinking green tea because in addition to these “polyphenols”, green tea also possesses other phenolics which are known depigmenting agents (hydroquinone is one such agent found in green tea). Nature has a way of bringing chemical balance to living things….a sort of Yin and Yang balance.

    Anyway, you are right. Good health is often a “mind over matter” issue. Sometimes, all it takes is faith, and the object of that faith can be anything, even tea.

    Rhetorical question: What the heck causes vit, and is the cause the same for all vitties who display loss of pigment? Until this is answered, there will be no real cure, only trends of faith and hope on one thing after another. But faith is good.

    in reply to: To be White or remain spotted? #148678

    Sanjay,

    You misunderstood. The other site is not Lorraine’s. It was started by desis and the like….just a small group of professional people of color from all over the world.:)

    Good luck, my friend!!!

    in reply to: Am I a good candidate for Depigmentation? #148676

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    in reply to: what you think about vitiligo realy #148664

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    in reply to: what you think about vitiligo realy #148656

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    in reply to: To be White or remain spotted? #148620

    [QUOTED]
    Regarding skin cancer, I told my derm the same thing ( lack of pigment cell means no melanoma), but he said there are other kinds of non melanoma skin cancers ( squamus cells and basal cells) which are also associated with Sun exposure. http://skincancer.org . But then again these are not the fatal kind and can be controlled if detected early and we would not be at greater risk than other white blonde people. Not a huge concern for me.
    [/QUOTED]
    Sanjay, this is exactly what I was emphasizing. The only cancers that you can develop are rare and easily treatable. Indeed this is not a problem. Normal skinned people catch these as well. And the only way to develop these is to sit senselessly in the sun regularly without protection (a very unlikely scenario, right).

    [QUOTED]
    Is it possible that my dark brown will gradually fade away and all I have to do is to keep using lighter and lighter shades of camouflages creams till I do not need it at all. Did you have such problems? I am sure Emerita wouldn’t have such problems as she says that she is already very fair, but my contrast is strikingly visible.
    [/QUOTED]
    There is no way to tell how your skin will depigment because each individual is chemically unique. Some people gradually fade while some people experience a mixture of fading combined with the development of new spots. The latter was my situation. The real important question is how long you will have to exist with extreme color contrast? If one allows vit to take its course, it can take at least a decade or more: on the flip side with depigmentation therapy, one only has to endure the contrast for up to 5years. Many people depigment fully in 1.5 to 2 years.

    Yes, some individuals can take up to five years to “fully” depigment. This time includes dealing with problematic repigmentation that occurs for some after depigmentation.

    I strongly suggest that you start reading the depigmentation forum here. It will give you the comfort of several individual experiences. Lorraine is the pioneer there and served as my “initial” guide for comfort. She has been depigmented for at least 2 decades.

    I became my own source of comfort later on by studying as much as possible in university. A lot of the minorities/people of color eventually stop going to the depig forum of this site because they have difficulty relating to the primarily caucasion experience. I also gave some of them some problems: I “outed” some of the fake vitties there who were spreading misinformation about the depig process in order to get people to buy creams from there company (ohh, the drama of it all).

    Anyway, I have found many indians, latins, and blacks who used to post on Lorraine’s site at another site now. Their usernames are different, but their stories are the same ones which they shared on VSI. When you get bored on the VSI depig forum, I will be occasionally here and elsewhere.

    in reply to: What is green tea #148586

    Green tea is typically the same plant used for ordinary tea. It is simply processed for brewing while the leaves are still green. That is, the leaves undergo no fermentation and carry a higher percentage of certain polyphenols which are suppose to aid against cancer among other things. The use of “pure polyphenol extracts” have been reported to have some benefits for vit. However, there exists no medical evidence that drinking green tea is beneficial since green tea is NOT a pure polyphenol extract. Some members are simply hopeful that green tea can benefit them, and there is no harm in being hopeful.

    Some members claim that green tea consumption is aiding repigmentation. But their anecdotal accounts are not scientifically supported. My childhood experience with vit suggests that sometimes pigment comes back on its own, and then it goes away again on its own….just a vicious cycle of losing and regaining pigment. Yes, vit does that all by itself. I propose that this is precisely what is happening with those drinking green tea: these people are simply unscientifically assuming the tea is doing the work. I will not rule out the idea that it could have some influence, however. My parents tried all kinds of kitchen remedies on me when I was very young.:)

    in reply to: To be White or remain spotted? #148584

    Hi again Sanjay,

    There are doctors who will do depigmentation on patients who display 50% pigment loss on visible skin. The general public will likely never see the skin beneath your clothing. So if a good portion of your face, neck and hands have lost pigment and cannot be reasonably repigmented, you would still be a good candidate for depigmentation. You just have to do the work to find a doctor who is understanding of your frustration. It took my doctor a long time to come around: I had to call another specialist and use him to pressure my doctor to take a decision finally.

    Anyway, I do not want you to think that I am pushing you in the direction of depigmentation.:) I just want to give some advise based on first-hand experience, from a person who has been through it all. Some others only have second-hand knowlege mixed with a little fear about the depigmentation process. I actually have real and total experience.

    I would now like to share some “real living experiences” with you. I have been depigmented for quite a while now. I live in the AZ desert!!! I have none of the problems which have been mentioned fearfully here. My skin is very healthy. One just has to be mindful of the fair skin issue: if I’m going to be in the sun for long spurts, I simply wear a good sunscreen. Because I am totally without pigment, skin cancer will not likely happen to me since it is often related to pigment production (you can’t get melanoma without melanocytes)!!!! The only thing you have to worry about is sunburn, but so does every fair-skinned person living in a hot climate.

    I know another vittie, who depigmented naturally, who has never used sunscreen in the desert. He is in good health even though his skin is always very pink from excessive sun exposure without sunscreen. I only mention this guy as an extreme case of what happens to totally depigmented skin in the sun. I’m not recommending that you follow this guys bad habits.

    Anyway, I will continue giving you info about the experience as you request it as it is always nice getting guidance from someone who has done it. LOL, even my own doctor had no experience, but fortunately we stuck it out and a specialist from Ohio,US gave further guidance.

    Good Luck!!!

    in reply to: To be White or remain spotted? #148565

    Hi Sanjay,

    I am fully depigmented. I, like you, began rapid loss of pigment several years ago. Repigmentation methods were no longer working. The financial burden of repigmentation was needless, considering that it wasn’t working. In the meantime, there existed people with all sorts of social/politcal reasons for why I should continue wasting my hard earned money to repigment. I got all kinds of ‘pseudo-explanations’ as to what was causing my vit. Some useless person even suggested that I must have done something terrible in a past life. People would advise me not to eat certain food, etc.; all of that talk turned out to be nonsense in the end. I still lost most of my pigment.

    In the end, I made the choice that my skin belongs to me and no one else. And the social disadvantages caused by my extreme blotchiness affect only my success in a career, not others. Since more than 80% of my pigment was already gone, my doctor gave me the option to depigment, finally. The decision was very hard, but I took that choice to depigment. I’m very independently minded: peer pressure doesn’t affect me much.

    I am so happy now that I do not have to wear gunky make-up on my skin to try and look normal. I am uniformly colored and happy. I no longer receive rude stares or feel a need to explain my condition to judgemental others. (Keep in mind that I had this pigmentation issue since childhood.) A lifetime burden was finally lifted from me. My thoughts throughout any given day no longer pertain to who might be staring at me for whatever reason. Certain cashiers no longer act funny when they hand back my change out of fear that they might catch “cooties” from me. I can now focus on other more important aspects of living.

    Bottom line, you must be a little selfish when it comes to the quality of your own life experience. The choice you must make does truly affect you the most, not those “nay-sayers” and “hangers-on” who might not be your friends later on in life. My advise to you is that if you can still repigment, you should continue trying if you like. However, if repigmentation has not worked for quite some time, and you are only losing pigment, feel no shame or regret if you choose the path of depigmentation.

    I wish you all the best!!!!

    Dr. Sen

    in reply to: 2007 National Conference to be held on East Coast #148191

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Viewing 15 posts - 16 through 30 (of 245 total)